Join the warriors who helped build Quilt

We built this early version of Quilt side by side with a close circle of adults living with sickle cell. Over the past year, their weekly feedback and collaboration shaped every decision and gave us the confidence to open access to more warriors who share their experience.
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That's how we build. Before we invite someone in, we want their first experience to be shaped by people like them.

Here's what you can expect:

Bring your medical records together from across health systems
Request care from expert sickle cell care teams
Find the services, events and programs provided by local community organizations
Browse and bookmark clinical trials and treatments to discuss with your family and care team.
Work with a human Navigator who offers personalized support at every step
Testimonials
As a warrior, advocate, and founder, I appreciate Quilt Health’s approach to complementing and amplifying—as opposed to duplicating—efforts to advance access to high-quality care for people living with sickle cell.
Ade Adeyokunnu, MBA
Patient Advisor,
Quilt Health
Ade Adeyokunnu, MBA. Founder, SikCel
For cutting-edge treatments, awareness and access is everything. That's my primary advocacy focus and one of the reasons I'm excited about Quilt.
Jimi Olaghere
Expert in Residence,
Quilt Health
As a hematologist, I am excited about the ways in which Quilt Health endeavors to help a far broader range of patients access the best possible care and treatment.
Dr. Natasha Archer
Hematologist,
Sickle Cell Specialist
Lead Clinical Advisor,
Quilt Health
Dr. Natasha Archer. Hematologist and Lead Clinical Advisor.

Frequently asked questions

Who helped build this platform?

The community has been in the kitchen with us since day one. Warriors have shaped this from day one. Through weekly meetings, real iteration, and a national patient beta, we made sure we were hearing from those beyond our network. This is how we build products - for warriors AND for clinicians.

How much does the platform cost for warriors?

Our platform is free for warriors. We aim to keep it that way through partnerships with like-minded sponsors who give us the resources to connect warriors to clinical trials and treatment.

Who controls my medical data?

Your consent is key. You can choose to share your medical records with your care team, your community, or researchers working toward better treatments.

What does "early version" mean?

This is an early version of Quilt - it works, but we're still building and making improvements quickly. Think of it as being invited into the kitchen to taste a new recipe to tell us if we should put it on the menu.

That means two things for you: you'll have direct access to our team, and we may ask for your feedback along the way. It's always your choice whether to share it. What you tell us will help us decide when the experience is ready for the wider community.